

Both kids have also been participating in an after school running program twice a week for two months for an hour. The training ended with a 5K that all Loudoun County Elementary Schools ran together. Running with the Stars was a lot of fun and I'm really proud of both of them for finishing the race. They ran with several friends including their friend Hailey.



The good news is that they have younger cousins on one side so they can continue to "play along" even when they don't believe. It is so different when they are the youngest versus their older cousins who get to carry on that magic so much longer! Having kids has definitely brought the magic back for me over the last 8 years and I hope we can keep it alive a few more years!
We also surprised the kids with a trip to Hersey PA! This has also become a December tradition. We usually go to the hockey game the weekend of the Bear Toss where everyone brings stuffed bears and throw them onto the ice after the first goal of the game. All the bears are donated to the local children's hospital. Unfortunately that game is the first weekend in December and we weren't sure when Johnny would be defending his dissertation so we decided to get tickets later in December.
We secretly packed the kids bags and when we got in the car we told them we were running errands (they didn't see us load the bags). We got a reservation at the Hershey Lodge for the first time since the new water park opened. We spent the afternoon at the waterpark and then headed to the hockey game. We were able to see Cocoa again! It was a great game and Reagan asked lots and lots of questions about the rules and what the players were doing. Not only that, Cole was on the jumbotron for the Fan of the Game! Cole and I also took a walk around the stadium to meet the service dogs. It was really nice driving the short distance to the hotel and being able to go the waterpark the next morning.


We closed out the year taking the kids skiing the week after Christmas. We haven't done that in three years so it was fun seeing them out on the slopes again. Both really enjoyed their lesson with Two Top Adaptive Ski School at Whitetail Ski Resort and were begging to stay longer. That was amazing given it was only 9 degrees the day we went!! We will definitely try to take them again this season. Although Reagan asked if she can skip the lesson next time and just "go down the hill really fast." God help us when she gets her driver's license!!

As we close out the year, I think back to the year before and acknowledge how far we have come. Last year we had 25 doctors appointments, one surgery and about 70 therapy appointments (Reagan wasn't off the wait list until May after going to Kennedy Krieger's Constraint Camp). This year we only had 11 doctors appointments and 48 therapy appointments (not including the dentist or orthodontist) and the second year in a row with NO hospitalizations! I looked back at my blog post at the end of 2012 and we had 108 appointments that year! We feel so blessed that life is becoming more normal and we hope to beat our record of 2 years without any hospitalizations in 2018.
As I think about our year, I can't help but think about the loss of my God son Evan. He truly had a sweet spirit and was very special to me and to our family. The four kids got along so well and we always enjoyed our play dates. This picture was taken the week before he was called to Heaven in August. His loss was a reminder to cherish each day. To hold every moment as sacred. To always say I love you. And never wait for tomorrow as it may not come. Evan's loss left a hole in my heart comparable only to losing my own child. This poem says it well...

but that is nothing new.
I thought about you yesterday
and the day before that too.
I think of you in silence
and often speak your name
All I have are memories
and your picture in a frame.
Your memory is my keepsake
with which I will never part.
God has you in his keeping
and I have you in my heart.
I hope that all our friends and family have a happy new year. I pray for health and peace for all. Yet I know there will be loss and there will be pain, so I pray you each have the strength to face what you must and that you embrace each day with all your heart and soul. God bless!