Camping amongst 3,400 ghosts!

After a very busy summer of work for both Johnny and I we were able to squeeze in a quick trip away with the kids.  We decided to try the Chesapeake Bay area since the weather was supposed to be amazing for mid-September.  We camped at a place called Point Lookout State Park in Maryland.  It is the point at which the Chesapeake Bay meets the Potomac River.  It was fun telling the kids this is the same water that passes by our house at Algonkian Park.  You could tell they were trying to figure that out.  We were so close to the peninsula that you could see the bay on one side and the river on the other.  It was nice to be able to see both as we explained the difference between the types of bodies of water.  They really liked that they didn't have to worry about the waves they are used to at the beach.

The peninsula was the location where over 52,000 confederate solders were imprisoned between 1863 and 1865 in the largest war camp in the Civil War.  Many of whom trekked there from Gettysburg!  There were between 3400 and 8000 soldiers who died right where our camp area was located.  It was amazing to think of how small the area was and how tight it must have felt with 52,000 soldiers.  This was very close to Dr. Mudd's house, which is where John Wilkes Booth fled after shooting President Lincoln.  So much history!  I can't say the kids completely appreciate the history yet, but they had fun regardless.

We climbed to the top of the Point Lookout Lighthouse which was standing when the prison camp was there.  The area at the top was SUPER small, hot and we found out later that was where the lighthouse keeper was found dead!  Eek!  Luckily she died of natural causes after taking over the responsibilities of the previous light keeper, her husband, after his death.  We were happy to be able to tour the lighthouse since it will be closed for the next year for renovations.

We also found time to ride bikes along the trails on the park, go swimming in the bay, go fishing and of course camp.  Unfortunately they didn't catch any fish, but they promise to try it again.The kids had a great time and we definitely look forward to going back when we have more time.  There were several other historic areas we wanted to be able to tour but didn't have time.

The only disadvantage of the trip was the crazy bugs!  Somewhat hard to tell in the pic of the kids, but they got eaten ALL over...including their faces!  Reagan is KNOWN to get eaten, so we keep spray in the camper and get it out as soon as we setup camp.  She was COVERED with spray everywhere except her face.  Watching her try to scratch her right arm is truly heartbreaking (lefty isn't strong enough to scratch).  Although I do have to give her credit - she gets very creative and rubs on the side of walls and tables.  We've also learned a lesson...it needs to get on the face or at a minimum in her hair.  We are also research alternative options for bug management :)  Like an industrial bug zapper!  The good news is that mom has gotten really creative with Calamine treatments.   I can apply many different designs including hearts, stars, polka dots and even Mickey Mouse ears.  It's all about making it fun right?!  And that we did just that...had a fun weekend just being with family. Feeling blessed...

Here's to another school year!

I can't believe the summer is behind us and another school year has already started.  It was a fun summer but flew by with work being so busy this year.  We were so lucky to have my niece Allison staying with us to watch the kids.  They had SO much fun this summer going to the pool, swim team, playground and riding bikes.  We definitely wouldn't have had such a smooth summer without her!!  And I know the kids wouldn't have had so much fun!

The kids also wrapped up summer with a week of Grammy Camp!  I had to go to Seattle for work, my niece already left for college and Johnny had to go to Dallas to speak at a conference.  The kids hadn't stayed with my parents before but were very excited.  They literally talked about it daily for two weeks before they went.  The kids had a great time!  My parents bought them both little ceramic banks - a fire truck and a bunny.  Each day they got paid $.50 to do chores and clean up after themselves.  They were so excited to tell me all about their adventures.  They had a fun time reading every day, riding the tractor and golf cart, using their new bow and arrows, washing the car, weeding and working around the farm.  They thought it was so fun that they got paid every day!

After Grammy Camp we had Open House at school followed by Back to School Night and the first day of school.  Both kids have a new team of teachers this year.  Cole is going into first grade and has Mrs. Galvan.  We've heard really good things about her and Cole has come home every day very happy and sharing lots of stories.  After such a challenging end of the year last year this is such a huge relief.  His teacher had a lot of really good questions about Cole when we met at the Open House and I was glad she is so on top of his IEP and understanding the challenges ahead.  She sends regular email updates and is always at the school by 5:30am so her door is always open.  Hoping for a good year!  Cole also has a new TVI and a new occupational therapist.  His special education teacher is new, but Reagan had her last year and we are very thankful for that!  I think this will be a really big year in understanding what we are facing with his braille education and how much that will play into his curriculum.

Reagan is going into third grade and has Mrs. Sherry.  We've also heard amazing things about her and Reagan is already coming home with a big smile and very positive stories about school.  She was VERY nervous the night before school started and was worried about being ready for third grade.  One day in the class and all those worries are gone.  She's especially excited about the pom-pom jar. Once it has 50 pom-poms they get to plan a party!  I love created behavior plans !  Reagan also has a new occupational therapist but she has the same special education teacher from last year and the same one Cole has.  Reagan continues to express concerns about getting pulled out of class for reading.  We decided to work a little harder at home on reading and see if that helps.  We're hopeful that this year she will have a lot of her skills "click".

We recently got them both flash cards and they are helping each other practice.  Reagan quizzes the addition and subtraction for Cole and Cole shows the multiplication and division cards for Reagan.  We're trying to make it fun and luckily we found super big print cards so they are easy for Cole to see.  We also purchased a new series of books for Reagan called Critter Club.  We're hoping if we keep trying different books it will help peak her interest.

So we're off to another year of school and I'm off on another trip to Seattle.  One more after this and I'm done traveling for the year.  We're looking forward to a few camping trips this Fall in addition to several doctor appointments so updates will surely be coming!

Summer full of braille - ESY and NFB BELL Camp

Well the summer flew by with a lot of West Coast business trips for mom which meant NO time to keep up with my blog.  So I'm playing a little catchup now...but better late than never is my motto.

Cole was able to qualify this year for the ESY program through Loudoun County.  This is an Extended School Year program for children who will see set backs if they are not able to continue their eduction over the summer.  This is different than "summer school" which is provided for children who are falling behind in school and need a full school day.  His ESY was for vision support only.  He qualified for 2 hours per week for four weeks.  He went to Horizon Elementary School for those weeks and saw the TVI (Teacher of the Visually Impaired) who had seen him toward the end of the school year, Jessica.  ESY and summer school rotate each year with where it is hosted and this year it was at Horizon for the Cascades area students.

We also decided to have Cole participate in a two week braille camp that was offered through the National Federation for the Blind.  It was hosted at St. George's Episcopal church in Arlington who was gracious enough to provide the activity room and kitchen.  This year there were four students in the camp, two twelve year old girls, Cole and a three year old boy (almost four).  Camp was from 9am to 3pm every day for two weeks starting July 31st.

The focus for camp included practicing O&M (Orientation and Mobility), braille lessons, and self advocacy and self care.  A huge focus of the program is to prepare children to become independent.

The kids had several outings and activities that helped them with these skills.  One of the first things they did was decorate new canes.  Cole of course chose batman tape to decorate his.  Unfortunately it didn't even last a week !  If you're wondering, no, they don't work like light sabers.  The first week they went to a playground not far from the church and learned to navigate crossing busy roads, curbs, grates and uneven terrain.

They also took a field trip to the White House Museum in Washington DC.  I was able to go on the field trip and it was very educational!  We had an appointment with a curator who was able to provide several tactile displays for the kids to learn about what it's like to live in the White House and the surrounding monuments.

There was a miniature white house they could touch in addition to local monuments and plastic food that were favorites in the White House.  It was a very challenging experience for another mom and I to escort a group of blind children and teachers through the busy streets of DC.  I had never before realized how many flower planters, lamp posts and broken bricks that were in the middle of our walking path. As an example, although Cole does have sight, he has no ability to see the cross walk signals across the street.  During our walk through DC they talked a lot about what you could hear to help you determine where it was safe to go, when it was safe to cross and how to help make those decisions.

I asked about the audible crossing signals and if they felt those should be Federally mandated.  Interestingly enough, the one teacher felt these actually give a false sense of security.  If you don't get used to listening for cars, you may not catch a taxi taking a right on red or a bus running a red light.  Hearing these dangers is critical for survival.  I truly can't image closing my eyes and trying to cross a street in DC.  It's actually quite frightening and dangerous with sight.

They had a lot of fun themes throughout the two weeks including a Dr. Seuss themed cooking day when they worked in the church kitchen to make green eggs and ham.  They were taught to navigate the kitchen safely and to use knives to cut their food and prepare food without getting burned.  You will notice that children with some sight were given "sleep shades" to take away any ability to use sight.  They firmly believe this helps increase the ability for the other senses to kick in and help them navigate their world.

Rock climbing was the field trip the second week and they all had a lot of fun!  Again, the experience is everything from getting there, doing the activity and getting home.  They taught them to use touch to help navigate the wall.  A very important skill for people without sight!  They also went to a local deli and needed to order for themselves and carry their food/tray to the table.

Another fun activity was a visit from the local fire department.  I shared that our company does education events to help children get more comfortable with the equipment firefighters wear and to hear what the SCBA (self-contained breathing apparatus) sounds like when a firefighter is breathing through it.  It really does sound like Darth Vader! They were able to coordinate a visit from the local Arlington station and the kids all really enjoyed touching the equipment and talking about fire safety.  I love that Cole was sitting right up front!!

The firefighters came on Super Hero day when the kids decorated special capes - because each is truly a super hero!  They also made special super hero masks.

They also made fun snacks.  One day was a movie day and they brought blankets and wore pajamas.  They also made "braille mix" which was a lot like trail mix but the M&M's represented braille dots, the pretzel sticks represented their canes, and the Cheezits represented a "full cell" which is the full combination of Braille dots.  So very clever and these little touches really made camp fun for the kids.  They also had a camping day where they made s'mores!

They also had a final graduation ceremony where the each child presented information on a different person and participated in a play.  One presented on Louis Braille, another on Helen Keller and another on Dr. Seuss.  I had no idea Dr. Seuss was not a doctor and that he hated kids!  They shared the story about his friend challenging him to write a book with exactly 40 words...and that's Green Eggs and Ham!  Cole played the part of Louis Braille in the camp play and did a great job!

Overall Cole learned a lot and we are very thankful for the amazing staff who supported the camp. They were so patient with all the kids, very kind and very creative in thinking about themes and activities to keep the kids engaged and have fun.

He will continue his braille education this year in school with another new TVI.  We are not sure when he will start using braille for instruction versus learning it.  I expect some of that depends how quickly he picks it up and how much of his school work begins to be a challenge due to small print.  He has a very demanding schedule this year and I'm worried about eye fatigue and headaches.  His day in first grade starts with 30 minutes of independent reading followed by 15 minutes of reading out loud, followed by one hour of guided reading, followed by 45 minutes of word study/writers workshop.  I pray he is able to handle the intensity of that schedule and plan to maintain close communication with his teacher, TVI and special education teacher to monitor how it's going.  I try to just keep reminding myself - One. Day. At. A. Time.

Beach bums at Duck, NC

Another fun week at the Outer Banks is in the books!  It's always hard ending vacation with the stark reality of having to come home to errands, house projects and a business trip.  But as I always say, "don't be sad because it's over, be happy because it happened!"

We went with Johnny's family so we had 21 in the house - 10 adults, 5 teenagers and 6 kids under 9.  We had a great week with no agenda and a lot of bumming around and doing nothing.  We also had a few adventures that the kids will hopefully remember!

The first few days were filled with the pool and beach.  It was pretty hot this week with temps over 95 every day and lots of sun.  It was the first year, though, that we got both Cole and Reagan in the water riding waves.  They had a lot of fun and started to figure out how important it is to stay on the far side of the breakers.  It is also a lot easier to trek down to the beach as the kids get older - they don't really play with beach toys and there's no need for diapers and wipes so it's just towels and chairs.  We were also spoiled with a house across from the beach which also helps.  It's easy to walk back for the bathroom, food or just to get out of the sun for a little bit.

Tuesday I was also able to visit with a dear friend Kelly who I've known since 1st grade!  She lives in Kill Devil Hills so it was great having her visit so we could catch up.  She has a son Cole's age so
they played in the pool which gave us a nice chance to talk.  Strong friendships truly do last a life time - I feel very lucky to have her in my life!  No matter how long it has been, it always feels like yesterday.

Wednesday was a packed day!  It started with a 5:30 am wake up to walk to the beach and watch the sunrise.  Although it seems crazy, the kids really loved it last year and it sparked a lot of engaging discussions about why the sun isn't dripping when it comes out of the water :)  And why you can't watch the sunset on the beach in NC...which led to Never Eat Soggy Waffles (N-E-S-W).  After sunset we took the golf cart up to Duck Donuts and brought them back for everyone which was super fun.  It actually drove pretty fast on the road! I always marvel at the little things that the kids remember and what is fun for them.

We then decided to take a trip from Duck to Kill Devil Hills to visit the Wright Memorial.  It was the first time we'd been there so we were a little surprised to find out it was all outside.  They are in the process of building a new museum and definitely look forward to going back when it's done.  The kids were able to run the distance of the first, second, third and fourth flights back in 1903.  We learned a lot about why Wilbur and Orville's breakthrough was so critical - flight control not necessarily lift! We are both history buffs so we had a great time despite it being so super hot - we were dripping with sweat even at 10am.  The kids were able to climb on a replica bi-plane but could not be convinced to walk up the dunes to the monument at the top.  It will have to wait until next time.

The park service also had kites that you could borrow and fly and the kids had an absolute blast doing that.  And of course kite flying is fun when there is great wind!  We decided to stop by the Kitty Hawk kite store and let Reagan pick one (Cole picked a car instead).  Of course she wanted to fly it as soon as we got home.  It was Nana's birthday so we had dinner reservations with the adults.  It was nice to go out for a nice dinner and the amazing older cousins watched the younger ones.  My kids just adore their cousins.  After cake and birthday celebrations I took Reagan out to the beach so she could fly her new kite.  She did really well!

Thursday we decided to go with the younger cousins and Pop to the NC Aquarium while the older kids went jet skiing.  Unfortunately my work call that I thought would be short ended up taking longer than the group was at the aquarium so I missed it...but heard lots of fun stories about the jelly fish and sharks.  After the aquarium we headed to lunch and then back to the pool to cool off.  That night we decided to go out to the Life Saving Service Restaurant #5.  It was a really neat restaurant that was one of 7 life saving stations on the NC border.  The US LSS was founded to help victims of shipwrecks and later merged with the Cutter Reserve to form the US Coast Guard.

Friday we decided to head to Corolla to visit the Currituck Island Lighthouse.  We weren't sure what to expect and how the kids would handle the walk, but they had a good time.  Reagan did not, however like being so high up and was ready to descend as soon as we got to the top.  It was crazy hot and of course we walked the steps with no AC, but they had fans on the landings so it wasn't too bad.  The lighthouse was originally built in 1875 and had 220 steps - one way!  It was neat for the kids to learn that before electricity the light was powered by lard and then oil.  At first they thought it would be fun to be a light keeper until they realized they had to carry that lard up the stairs every day and had to go back up in the morning to turn off the flame.  And the light keeper had to get up every two hours to rewind the weights that created the "blinking" effect of the light.

Although we packed bathing suits with a plan to drive on the rural part of the beach at Corolla, it was pretty hot so we had a quick bite to eat and headed back to the house to play in the pool.  Also, we planned to head out about 5pm to drive back to NOVA and needed to pack.

If you remember from our vacation last year at OBX, Cole came down with a horrible headache that took him down for almost 2 days.  We were watching his water intake carefully this week and luckily had no problems!  It was nice having a week with no medical issues!  We feel very blessed to have had a great week together!

NOTE: For privacy reasons I do not post pictures of all the cousins.