Neurosurgeon Visit and Indoor Skiing

Just found this post in "draft" that I apparently forgot to post.  Hate to miss it so here it is...

Well I truly haven't had much to post this year (2018), but I will add an update from our appointment with Dr. Myseros in November.  Both kids had a visit with the neurosurgeon.  Cole's appointment was of most concern given we were getting feedback on the FAST MRI that was done a few months ago.  The good news is that the results look stable from the last scan five years ago so everything is working well.  The other amazing news is that he doesn't want to see us back for TWO YEARS!  Wow, what AM I going to do with all this newly found time?!  He also said he would like to wait for any additional brain imaging for five years unless he is symptomatic.  Also great news!

Reagan also sees Dr. Myseros and also had a great check-up.  No symptoms, but still good to keep that relationship in case she starts to show any additional signs of seizures.  As she moves into puberty we expect to have some challenges with medication levels due to varying hormones.  But she will also wait to go back for two years.

So now on to the fun updates.  In anticipation of ski season, we decided to sign the kids up for lessons at the new Indoor Ski Training Center in Leesburg.  We have already requested lessons with the Wintergreen Adaptive Ski School and are waiting to hear back.  We bought the kids their first skis last year and unfortunately Reagan already grew out of hers.  However, Alpine Ski shop has a GREAT buy-back program so we traded in her old ones and got some that fit her a little better.  We were hoping to give them to Cole, but he isn't quite ready for hers.  Looking forward to some snow this year so we can get them out more!

Until then, we will enjoy the holiday season and dwell on all our blessings.  There was a day that I had trouble finding time to post updates between appointments....now I find I don't really have anything of value to post as updates.  And although we still have many challenges that we face with both children, I am eternally grateful to focus a lot less on doctors appointments and more time on fun....and I pray that continues!